Liv4TheCure hosting food truck festival to support children with rare chromosomal deletion syndromes

Niskayuna, NY, August 20, 2019 – Liv4TheCure, a local charity formed by Stephanie and Aaron Forman after their daughter Olivia was diagnosed with Wolf Hirschhorn Syndrome, is hosting the Niskayuna Food Truck Festival to raise money to fund research and education for rare chromosomal deletion disorders.

This story was covered by the Daily Gazette, read article here.

The Niskayuna Food Truck Festival is open to the public and will be held at the Zenner Road Soccer Park behind Craig Elementary School off River Road on September 15, 2019, from 12-6 p.m.  A $5 donation will get you access to the festival and kids under 5 years of age get in for free – Liv4TheCure has capped the entrance fee at $20 per family.

A number of local and well-known food trucks will be serving up burgers, veggie wraps and everything in between.  Live music will be provided by Josh Casano, Up the River and a special half hour of kid’s music performed by Carolyn Keenan.  Kids will enjoy playing in two bounce houses, enjoying pony rides, engaging with the Bizzy Bees Bus from Spotted Zebra, a face painter and other activities.  A full list of food trucks, vendors, sponsors and activities can be found below.

“We established Liv4TheCure as a way to fight for our daughter and others like her who are dealing with rare chromosomal disorders like Wolf Hirschhorn Syndrome,” said President, Founder and Mother, Stephanie Forman.  “Olivia has had such a profound positive effect on our lives, and the lives of everyone she encounters, that we felt a powerful urge to do what we can to help her, and children like her.”

Liv4TheCure’s mission is to advance science, technology and treatments for rare chromosomal deletion syndromes.  Stephanie Forman, the President & Founder of the organization lives in the town of Niskayuna with her husband Aaron, daughter Olivia “Liv” and son Jack.

For more information about the event visit liv4thecure.org or contact Stephanie Forman at liv4thecure@gmail.comor by calling 518-225-4155.

Additional information:

Food Trucks:

  1. NY Health Eats
  2. Charcoal Dole
  3. Curvy Girls
  4. Burger 21
  5. Given to Fry
  6. Brads Catering
  7. Rollin Smoke
  8. Buena Comida
  9. Kona Ice Truck

Vendors and Concessions:

  1. Green Mountain Concessions
  2. Recovery Project
  3. Triple M Gems
  4. Bath Fitter
  5. Young Living Essential Oils
  6. Nothing Bundt Cakes
  7. Upstate CBD
  8. Yum Yumz Italian Ice
  9. Palate de la Rosa – Tacos
  10. Psychic Medium Sandra Streun
  11. Nerdy by Nature (Jewelry)
  12. Alexandria Reid Massage

Sponsors:

  1. Town of Niskayuna
  2. Niskayuna Martial Arts
  3. Amazing Athletes
  4. Carver Sand & Gravel
  5. Wolff’s Biergarten Schenectady
  6. County Waste
  7. Big Johns Portable Toilets
  8. Howard Hanna Real Estate Services

Live Music:

  1. Up the River (band) (3-6 p.m.)
  2. Josh Casano (12-2:30 p.m.)
  3. Special kids’ music – Carolyn Keenan (2:30-3 p.m.)

Kids Activities:

  1. 2 bounce houses
  2. Pony rides
  3. Bizzy Bees Bus from Spotted Zebra
  4. Tent for Niskayuna Martial Arts and tent for Amazing Athletes
  5. Face Painter

Kickball Tournament:

The Liv4TheCure Kickball Tournament, sponsored by Empire State Kickball, will start at 11am. The winning team will receive medals and a free round of drinks and happy hour specials at Wolff’s Biergarten in Schenectady.  The deadline to enter the kickball tournament is August 31.  To enter, contact Jorge Blanco at liv4thecure@gmail.comor call him at305-915-5998.

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